This picture breaks my heart. He was so sad when we first got to his room...
Watching his very own flat screen t.v. and looking at the Space Chimp cards that came in his National Geographic for Kids magazine.
Isabel thought the whole thing was pretty sweet really. A giant playroom? Our own HUGE t.v.? Her own "desk" for doing her "studying"? She was sold.Well, it's over.(!) This pH and impedence study was, by far, the most traumatic. The placement was not fun--although they'd given Milo some medication to sedate him it either a. wasn't enough or b. they didn't wait long enough. Either way, he screamed and gagged and wretched and fought through the whole thing. :( When Spencer brought him out afterwards, Milo was still crying so hard...it sent this momma straight into ugly cry. Thankfully, they were able to confirm the placement (by xray) pretty quickly and we went straight up to our room. Things slowly got better after that. It's amazing how distracting a giant t.v., an XBox, a sweet playroom and a few wagon rides can be!
The new Children's Hospital facility is absolutely amazing. We've been there multiple times for consults etc. since they moved but this was the first time we'd stayed overnight since they moved. It was MILES above the last facility. It was so nice to have my own bed, our own room, our own bathroom, and a t.v. that you could see without squinting.
While we were there, one of my forever friends, Summer (Loosli) Voorhies, came to visit us with her super adorable and still new baby Sophie. She was in town house hunting (they're moving here at the end of the summer!!! YAY!). It was so fun to see her and such a nice distraction (for Mommy). We are so excited to have her and her family move here. Now, we just have to work on convincing them to stay here after school is finished...
We should (cross our fingers) hear something from the docs today or tomorrow. (They have to download the data from the probe and interpret it.) I honestly don't know which way I'm hoping it will go. Do you hope that the Nissen has slipped and they have to repair it (but at least we'd know what was wrong) or do you hope that the Nissen is fine (but then what caused that big airway event and holy cow am I ready to start all over again with more specialists???) ?
We'll keep ya posted. ;)
10 comments:
Yes, please let us know how he is doing. So hard on everyone!
It was fun to see you guys too! Milo is such a sweet little kid, it was fun to chat with you for the short time that we were there. I can't wait to be in Colorado because since being back in Texas I am melting...melting...melting (voice fading away)
Oh he is such a cute little "fall risk"! We miss you already! We will keep you all in our thoughts and hoping for the best outcome. And a new baby!
(tears, big, fat tears) that first picture breaks my heart. poor guy. we're praying for him (and the fam). i can't wait to snuggle with him.
What a little trooper. It was great to see you all again.
Sad picture of Milo! Big hugs and kisses all around. Keep us updated!
I'm so glad things are over for now...It's the worst when you kids are hurt or sad or scared and you feel it like 100 times more than them. I'm so glad you got to see Sum. It will be so much fun for you guys to live so close. Godd luck with Milo and do keep us posted
I hope Milo has recovered from all the goings on and that you hear from the docs soon. Nothing worse than waiting.
I'm relieved to hear that the probe stayed where it was supposed to so you've got a full set of results to work with. Hoping for the best, whatever that turns out to be.
Of course you went into the ugly cry! I am just looking at that sad little face!
Hang in there!
I hope they find out whatever you want them to find out...=) Good Luck and happy waiting. Don't stress out too much, remember it's not in your control. He is such a trooper! Good Job Milo!
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