Today, our worst fears about J's baby--who had quickly become "our baby"--were confirmed. She has a triplication of the 18th chromosome or Trisomy 18. The prognosis for Trisomy 18 babies is, generally, very poor. :( Over half do not survive to their due date and, beyond that, a minority will live beyond 1 week. The condition has a large number of serious or fatal anomalies associated with it. Based on J's specific case and the baby's ultrasound, her doctor has recommended that she deliver the baby immediately.
Our hearts have felt like they are breaking today. Although we've only know J for a month, we've formed a very strong bond with her and had already made such a big place in our hearts for her, her children, and this sweet girl that we dared to hope would be a part of our family very soon. We are so sad for us but we are even more sad for J and for her loss and grief. She is an amazing woman who has been through so much and has proven herself to be so strong yet, sometimes, it just seems like too much for a person to endure.
We are doing our best to see how it is that something that seemed to be working out so perfectly and seemed "meant to be" could have turned out so much different than we'd envisioned. We are trying to take comfort in knowing that, although J would have had to endure this whether she'd found us or not, at least now we can offer her some support and love during this process. As strange as it may sound, we also take comfort in knowing that, although the baby will not have "known" us in this life, at least she will leave this life having been loved and wanted by two more people.
I'm not sure what else to say. I know that this is a difficult grief for others to understand or to comprehend--it's difficult for us to understand too. I also know that it's probably hard to know what to say. But, still, thank you. The phone calls that started rolling in as soon as we told immediate family were heartwarming. Sometimes you can sense that the Lord would put his arms around you if he could--today was one of those days.
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Things that were supposed to be their own posts but won't be...
In the midst of all of this, I'd forgotten to share the news that Milo's EEG was normal. From here, we'll just hope that he does not ever have another seizure. Ever. E.V.E.R.
Also, the kids and I are included in an article in HealthAware magazine this month. If you live in the Northern Colorado area, keep your eyes out for it--mostly at doctors' offices etc.. Or, better yet, click on the link and read the PDF version. We're on page 9. It's an article about prematurity (November is prematurity awareness month).
13 comments:
Erin and Spencer, we love you guys so much - please send J our love and concern for her. You are in our prayers.
Oh Erin, I think that you are in the right place at the right time. It has to comfort J so much to know that even with the babies problems you are not running scared. I am sure that the love you have for both her and her baby have saved her through this trial. You are in our prayers.
I'm so glad you shared the news with us, you are really opening your hearts not just to the baby and birthmom, but to everyone who knows you and loves your family. An open heart allows you to love, but also to get hurt - I know your heart hurts but I hope you also know HOW MUCH your friends and family love you and are crying with you.
I am also smiling with you that the EEG results were normal; thank goodness for all the little blessings to get us through the day.
I'm so sorry and don't even know what else to say. :( Hugs to you all. You are in our prayers.
P.S. Glad to hear the test results were normal. Brynn had a febrile seizure when she was 2 so I can somewhat relate to that experience. Not fun. xoxoxo
I'm so sorry. You and J are in our prayers. We love you.
Your right, it is hard to know what to say other than we are sorry that you have to go through this, and J too. The Lord works in mysterious ways. It will all turn out for the better. You will be blessed. You have been in my prayers so much lately. I have so many friends who are trying to adopt or get pregnant, that it is all I can do is just pray. You two are amazing parents and will be again soon. Be strong.
I hate that. I just do. I'm such an optimist that just this morning, as I was mentioning you in my prayers, I was so sure it would all be fine. I hate that it's not. I'm so sorry.
Oh Erin I am so sorry to hear this. I wish I had something wonderful to say- but I don't - all I can say is that you guys are in my thoughts and prayers.
You know how I feel about it. Just know how much you are loved and how many prayers are being said in your behalf.
I know how hard it was to write this post. Your willingness to share this with everyone is such a gift. I am amazed by your strength and inspired by your faith. You know I am here for you.
SO SORRY!!! I think you hit it on the head, maybe it was "meant to be" because as hard as it is, you are all so strong and J needs a bit of extra love and care right now.
SO HAPPY to hear Milo's results, hope it does NEVER happen again!
I am so sad along with you guys. I too thought it was all going to fall into place this time. I am so sad that it did not. Your family and J's family have been in my constant prayers.
Erin -
I know we don't even know each other, but I think you remember our "connections"....Sage and Aislinn. I am SO sorry to hear this news. My heart is broken for all involved. I know this might sound strange...but could you email me...I have a few questions for you...froncechiara@hotmail.com
Thanks!
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